- Posted August 21, 2013 by
This iReport is part of an assignment:
Impact Your World
End The Pain!
I have suffered with bilateral (both sides)TN for about 15 years. At one point right before I was scheduled for my first MVD (brain surgery), I truly wanted to die. I could not eat, speak, wash my face, brush my teeth or move my head even slightly. I could only lie very still and write messages back and forth with my children. If not for my children, I truly believe I would have ended my life. I have had 3 micro-vascular decompression surgeries, a balloon compression, and several local injections inside and through the outside of my face. Although my left side is pretty much completely numb, I still have breakthrough strikes of pain. I lost 60% of my vision on this side due to an injury to my cornea which I could not feel. I cannot feel my nose when it runs or food on my face, yet I am still terrified when the shocks of pain strike. The pain now compared to when I wanted to end my life is minimal and I am not taking any of the horrible meds prescribed to help us, but the fear is there every single day. I started an on-line Face Book support group about 1 year ago and already have over 500 members. Are we more aware today or is this Monster Suicide Disease affecting more people? Help us please!