My name is Sean Korbitz and I have a genetic mutation known as VHL or Von-Hippel Lindau syndrome that involves the uncontrollable growth of tumors, both benign and malignant, in my body. I had a brain tumor in 2007 on the base of my brain stem, and that was removed completely and successfully. I currently have over half a dozen tumors/lesions in my pancreas and have since been considered to insurance companies as having a "preexisting condition." This pretty much eliminates most coverage for treatments, scans and surgeries that I need to remove any tumors in my body.
If you want more information on VHL go to vhl.org
For information on the ACA, aka Obamacare, go to hhs.gov/healthcare/
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