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    Posted January 19, 2014 by
    catrb933
    Location
    philadelphia, Pennsylvania
    Assignment
    Assignment
    This iReport is part of an assignment:
    Living with a rare disease?

    Syringomyelia

     
    During high school and college I suffered with recurring hypoglycemia. I would be lightheaded and occasionally black out. After battling an the equally annoying nausea, I found out I had gastroparesis and a esophageal motility disorder, a semi-paralysis of the stomach muscles and esophagus that prevents food from being properly digested. But no one could tell me why my GI tract had slowed. The final piece of the puzzle came a year later when I noticed I had trouble walking up the stairs. My legs would get weak really quickly and I was terribly fatigued. The neurologist said it was syringomyelia, or a cerebrospinal fluid-filled cyst had formed in my spinal cord. Currently, there is no treatment. Because it involves my cervical spine, no neurosurgeon wants to take the risk to drain the cyst. My new "normal" involves stabbing pains and wobbly legs, muscle cramps and lethargy, and spasms and overall weakness. I feel trapped in my body.

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