- Posted January 21, 2014 by
This iReport is part of an assignment:
Living with a rare disease?
My daughter Carley has Ewing Sarcoma
They are in the prime of their life and have so much to offer but their lives are being wasted. Instead of spending money for research in sarcomas and brain tumors, we are spending money for research on Viagra and plastic surgery.
Nature Journal did a fantastic video on Carley's story and the life saving immune vaccine therapy she was the first to do as a Ewing patient after relapsing a year after her initial treatment. To view go to: http://www.nature.com/nature/videoarchive/cancer-immunotherapy/index.html
Carley also made her own video for our foundation's annual Going for Gold Luncheon. It has been uploaded into your media file.