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  • Click to view shozgirl's profile
    Posted January 22, 2014 by
    new york, New York
    This iReport is part of an assignment:
    Living with a rare disease?

    One in a Million

    I have Chordoma, affecting only 300 people a year. It is 1 in a million, lucky me!! Due to its extreme rarity there is little research and not one drug. We only have radical surgery and strong types of radiation to utilize. It is a tenacious and aggressive disease with poor prognosis. Read my story. Donate Please!

    I am attaching links because they tell the story: and video I have my 15th surgery 2/18. Sigh. Thank you.
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