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    Posted January 22, 2014 by
    shozgirl
    Location
    new york, New York
    Assignment
    Assignment
    This iReport is part of an assignment:
    Living with a rare disease?

    One in a Million

     
    I have Chordoma, affecting only 300 people a year. It is 1 in a million, lucky me!! Due to its extreme rarity there is little research and not one drug. We only have radical surgery and strong types of radiation to utilize. It is a tenacious and aggressive disease with poor prognosis. Read my story. Donate Please! www.chordomafoundation.org


    I am attaching links because they tell the story: http://chord.convio.net/site/TR/Events/General?px=1005900&pg=personal&fr_id=1030 and video
    http://www.youtube.com/watch?v=E0P1WV_p_iA&feature=youtu.be I have my 15th surgery 2/18. Sigh. Thank you.
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