- Posted January 22, 2014 by
San Francisco, California
This iReport is part of an assignment:
Living with a rare disease?
2 Years Living with Synovial Sarcoma
I have been living with a rare form of cancer called a Synovial Sarcoma since Jan 2012. The disease was originally found in my back and has since metastisized to both of my lungs. In the past 2 years I have endured 17 rounds of chemo, 33 doses of radiation and over 20 hours of surgery. I receive chemo every 3 weeks as part of a continuing treatment - there is NO end to it. I will be treated for as long as I can live. Yet, through it all, I have managed to continue living an amazing life. I ski, I bike, I hike and most importnantly, I enjoy time with my family and friends.
See a recent blog of mine - http://curesarcomablog.org/2013/10/15/life-the-adventure/.
Live life to the fullest everyday! You never know when it will be taken from you.