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    Posted January 23, 2014 by
    estherluna
    Location
    Hallandale, Florida
    Assignment
    Assignment
    This iReport is part of an assignment:
    Living with a rare disease?

    Gone too Soon Esther Luna 12/31/2001-05/06/2011

     
    This is Dorit's story:On December 31, 2007, we were given the greatest gift, our daughter Esther Luna Chekroun was born. I have never experienced such joy and fulfillment. Nothing made us happier than to be parents to this amazing little girl who was just perfect. On November 17th, 2009 our nightmare began. We were told our precious daughter had Cancer, the words no parent ever wants to hear or come to terms with. Our daughter was diagnosed with a rare sarcoma Rhabdomyosarcoma Alveolar. How could this be true? It took us weeks just to pronounce these words. We ended up at Memorial Sloan for treatment and lived at the Ronald McDonald House for 18 months. Esther Luna fought hard. She had 3 major surgeries, 12 rounds of chemo, oral chemo, and 40 days of brutal radiation that burned her little body. Yet each day she was happy and had a smile on her face; she was so special and strong. Esther Luna relapsed 5 weeks after she was off chemo. She had a seizure and was sedated for 5 days in ICU after having surgery to remove a monster tumor in her brain. Luckily she recovered but unfortunately the monster had spread all over her body. 6 months later on May 6, 2011 our baby girl Esther Luna passed away at the age of 3 years and 5 months. She was our life, a pure soul. She was our only child and we will never forget her.
    With Love and Light , Dorit

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