312
VIEWS
2
COMMENTS
 
SHARES
About this iReport
  • Not verified by CNN

  • Click to view jginlv1979's profile
    Posted January 25, 2014 by
    jginlv1979
    Location
    Nevada
    Assignment
    Assignment
    This iReport is part of an assignment:
    Living with a rare disease?

    Child fighting a losing battle

     
    Our story is about our daughter who was diagnosed with Leukodystrophy after being mis-diagnosed for a year. It took us over 4 neurologists in 3 different states before she was diagnosed. Our story is journaled on our website. www.hugsforhailey.com everything from from hospital stays, surgeries, traveling out of state, applying for a Make a Wish and everything in between is documented there, as well as photos.
    Add your Story Add your Story