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    Posted February 4, 2014 by
    KaitlynW
    Location
    Pennsylvania
    Assignment
    Assignment
    This iReport is part of an assignment:
    Living with a rare disease?

    FMD and Me!

     

    Hi everyone!

    I was diagnosed with a rare disease called Fibromuscular dysplasia in October of 2012. At the time I was 6 weeks pregnant with my second child. The FMD had caused a chain reaction of renal artery stenosis which caused uncontrollable hypertension. My blood pressure was around 240/140. I was told it was in my best interest to give up the pregnancy because no one knew if the baby would make it to a viable date or if my body could handle the pregnancy. I needed a surgery that I couldn't have until I delivered.  We decided to push our luck a bit and my son and I fought very very hard and made it to 29 weeks! He was born on March 22nd weighing 2lbs 5oz, he is now ten months and thriving! I had angioplasty on my renal arteries and just last week was taken off all of my meds! It's a progressive and aggressive disease with no cure but for now I am winning. Love and hope to all others fighting rare diseases!

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