- Posted March 22, 2014 by
This iReport is part of an assignment:
Living with a rare disease?
Friends that can save my life
I live in Sharpsburg, Ga. a small town south of Atlanta Ga. Eleven years ago I was thought to have ALS. After not likening what I was hearing I sought another neurologist, Dr. Douglas Stuart of the Peachtree Neurological Clinic in Atlanta.
At first Dr. Stuart thought that I was suffering from M S due to the fact that all of the symptoms started after I had a severe bout with the flue. He was not positive that it was MS so he preformed a few blood test that confirmed Stiff Person Syndrome.
Stiff Person Syndrome changed my life forever. It is so rare that there is limited treatment. They have to look outside the BOX to find a treatment that fits the person.
I have had times in my life that I could not even attend school events for my son because of sudden noise that would send me into spasms and lock up like a Tin Man.
I am trying to raise funds to have a Stem Cell Transplant. It is a radical treatment but it is better than living in the constant pain that I endure daily. The only time that I am not in pain is when I am asleep.
Please look at my story and feel free to call. I need help from friends to be able to have this treatment preformed.