- Posted March 28, 2014 by
Huntington, West Virginia
This iReport is part of an assignment:
Communicating through autism
Communication it's just about using words
- dsashin, CNN iReport producer
I remember at an early age we eventually strated introducing PEC’s cards. Trey could understand us, but he had minimal way to communicate back… it was a one-way-street. PEC’s cards helped, but they had their limitations.
It wasn’t until Trey was 5 or 6 that his language started to surface. It’s been a slow progression; he’s been receiving speech therapy since he was 18 month old. Even today at 11, he has 2 hours of private speech and then he also receives speech therapy through his school.
I loved seeing the video with Ron Suskind… so much so, I kinda used the theory that night when trying to get Trey focused and ready for bed. He too loves movies, and went through a “Thomas the Tank Engine” phase… but now he is obsessed with Mario Brothers. Any parent (not only one of a child with special needs) uses a child’s interest to help drive behavior… for us, a reward for a special achievement might result in a new Mario character stuffed animal, but I never thought about using it for communication.
Behavior issues has been our latest struggle, transitioning to different activities, etc. So that night I used his Mario characters to “talk” to him and transition away from TV timeand into brushing teeth and getting ready for bed. His eyes sparkled, as if he was living in the magical world of a Mario game, and just like that he gleefully started to get ready for bed. I was amazed… why hadn’t I thought of this before?
We’re fortunate that Trey can now communicate, while it is still sometimes difficult to understand and his sentence structure may be limited, we know we are blessed that he continues to improve.
Communication isn’t just about using words, for us it’s about us using the right words with him, and communicating frequently. Our tone, the words we use, etc can make or break how Trey reacts to us. We’ve learned this the hard way, and it’s so easy to get wrapped up in life and without thinking, forget to cue him that he has 5 minutes of TV time left, vs. “time up” without warning. Trey can go from calm to nuclear meltdown in 5 seconds flat… it is possible in those 5 seconds to talk him off that ledge (again communication)… but past that, there is very little you can say or do… just wait out the melt down. At times it’s horrific, as if he is possessed, and through trial and error we’ve learned he cannot control this, as frustrating as it is for us, he cannot control it. But when it is over, the sweetest child with his head down low almost always says “sorry mom… sorry I yelled at you and hurt your feelings”… those words (communication)… I know he means it… and it is enough to melt your heart.