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    Posted April 5, 2014 by
    Bellydancer
    Location
    Columbus, Ohio
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    Eliza - You Could Help Save Her

     

    I follow Nationwide Children's Hospital on Face Book. This morning I read a story about Eliza and her illness. I had never heard of Sanfilippo Syndrome - a devastating disease that will rob this little girl of the ability to speak or walk. It will leave her tiny body in pain, inflict seizures and loss of all body functions as it finally takes her life.


    Right now, she is pretty much a typical 4 year old. But she is beginning to show signs of the disease and by the end of the year her symptoms will increase as the devastation begins.

     

    Nationwide Childrens Hospital could start a Gene Therapy trial by the end of the year. It could potentially save her life. Other children afflicted could be treated.

     

    Funding is the issue. They need to raise 2.5 million to begin. That is all - just 2.5 Million. Yes, that is a lot of money..but it struck me as a small amount considering that the life of this child, and others, could be saved. Their suffering prevented. The prayers of these families answered.

     

    2.5 Million - that is all. Please take a look at

     

    http://www.gofundme.com/ElizaONeill

     

    Please donate - any amount will help. 2.5 Million is attainable.. it can be done. The clock is ticking for Eliza..this needs to happen in time to save her.

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