- Posted May 15, 2014 by
One Day Can Make a Difference
One Day Can Make a Difference a free event for those with relapsing multiple sclerosis and their care partners
Multiple sclerosis is a chronic, unpredictable disease of the central nervous system (CNS), which is made up of the brain, spinal cord and optic nerves. It is believed to be an immune-mediated disorder, in which the immune system incorrectly attacks healthy tissue in the central nervous system. Some immune mediated disorders include psoriasis, rheumatoid arthritis and type 1 diabetes. However, to date no specific antigen has been diagnosed resulting in some MS experts to conclude that MS cannot be classified as an autoimmune disease currently.
According to the Multiple Sclerosis International Federation (MISF) 2031 Atlas MS study 2.3 million people worldwide have MS. The National Multiple Sclerosis Society estimates more than 15.000 people in Michigan are diagnosed with the disease.
Relapsing-remitting multiple sclerosis (RRMS) is distinguished by clearly defined attacks of worsening neurological function. The attacks commonly referred to as relapses, flare-ups or exacerbation's and are followed by remissions (partial or complete recovery periods). During remission symptoms improve partially or completely with no obvious progression of the disease.
Relapsing-remitting multiple sclerosis is the most common disease course at the time of diagnosis. Approximately 85% of people are initially diagnosed with RRMS, compared to 10-15 percent with progressive forms of the disease.
On Saturday, May 17th, 2014, One Day Can Make a Difference will be held at the Adpba Hotel in Dearborn, Michigan.
This is a special event for people living with relapsing MS and their care partners who want to learn more about the disease. This event will provide information about relapsing MS and AUBAGIO® (teriflunomide) a once-daily oral treatment to treat relapsing forms of MS. This drug decrease lymphocytes, a key enzyme required by white blood cells which can attack the nerves in your brain and spinal cord. This helps to reduce the number of relapses and can aide in slowing down the physical problems which are caused by MS. Aubagio was approved by the U.S. Food and Drug Administration (FDA) in September, 2012 for patients with relapsing forms of multiple sclerosis.
The event will feature an expert panel; a neurologist, people with MS, and others will discuss MS and a treatment option, and will answer questions.
Workshops: Join 1 of 3 different sessions led by experts on relationships, communication, technology and other topics. Come ready to participate in the one that interests you most:
Effectively Communicate Your MS Story: Learn how to tell your MS story to loved ones, friends, and others in your life in a way that honors your experience.
This workshop will be held by Michigan resident Jennifer Reida , artist, advocate and MS patient.
Jennifer’s project called, A Year of MS an online journal that features portraits of people with MS painted by Jennifer. Each painting is accompanied by the person’s story. Jennifer hopes to have 365 portraits completed by the end of the year. According to Jennifer the project has been a way of helping her heal, and a way of keeping busy while she copes with her disease..
Make Technology Work for You: Learn how technology may be able to help people living with relapsing MS.
MS and Your Relationships: Get suggestions and explore strategies for having open conversations with others,
Enjoy the MS Health Fair: Organizations, companies and support groups devoted to people living with MS will be on hand to talk, share and help.
This event is bringing together a diverse group of people; health care providers, patient advocates, experts from various fields, people with MS, their care partners, and you. Breakfast and lunch will be served. Free parking is available. Walk-ins are welcome but registration is encouraged.
Sign up today at https://www.aubagio.com/everyday
To learn more about Genzyme and the services they provide and to sign up, visit www.MSOnetoOne.com, or call 1-855-MSOne2One (1-855-676-6326). The program is available online and through telephone support, and provides participants with information about MS as a disease, treatment and access to other helpful online and local resources.
One Day Can Make a Difference Event:
Adoba Hotel Dearborn - 600 Town Center Dr, Dearborn, MI 48126
I will be conducting an exclusive interview with Jennifer that will be appearing on the Examiner tomorrow. Read about this talented artist, advocate and MS patients views on MS, coping and how to share your own story.
You can view the portraits and read the stories on her blog; A Year of MS; http://ayearofms.wordpress.com/