Share this on:
 E-mail
917
VIEWS
8
COMMENTS
 
SHARES
About this iReport
  • Not verified by CNN

  • Click to view lisahilton's profile
    Posted June 2, 2014 by
    lisahilton
    Assignment
    Assignment
    This iReport is part of an assignment:
    Impact Your World

    More from lisahilton

    Worldwide Lyme Protest 2014

     

    This year the second annual Worldwide Lyme Protest was on the weekend of May 16-18th. There were protests in Australia, Belgium, Brazil, Canada, Croatia, Czech Republic, Denmark, England, Finland, France, Germany, Hungary, Iceland, Ireland, Italy, London, Luxembourg, Netherlands, Norway, Poland, Romania, South Africa, Sweden, Switzerland, United Kingdom and the United States. Some had actual protests out in public while others had online events to help spread Lyme disease awareness.

     

    Here is the mission statement of the Worldwide Lyme Protest.

     

     

    Mission Statement:

     

    Worldwide Patients are raising awareness and protesting to highlight the need for:

     

    1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.

     

    2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.

     

    3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.

     

    4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.

     

    *Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”

     

    * Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.

     

    5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)

     

    6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit.

    What do you think of this story?

    Select one of the options below. Your feedback will help tell CNN producers what to do with this iReport. If you'd like, you can explain your choice in the comments below.
    Be and editor! Choose an option below:
      Awesome! Put this on TV! Almost! Needs work. This submission violates iReport's community guidelines.

    Comments

    Log in to comment

    iReport welcomes a lively discussion, so comments on iReports are not pre-screened before they post. See the iReport community guidelines for details about content that is not welcome on iReport.

    Add your Story Add your Story