- Posted June 17, 2014 by
Palm Coast, Florida
This iReport is part of an assignment:
Raising a special needs child
What do you mean,Speical Needs? He's only Blind!
"I wouldn't let me kid throw a fit like that in public."
"He's only blind, he's not special needs!"
Are just a few of the things I hear on a daily basis. My son, Francesco was born with Septo Optic Dysplasia,leaving him blind. My sweet boy is one of the 6.3-100,00 that have SOD.
Everyday is a fight. My son struggles with daily activities. As he has gotten older, a few things have gotten easier, Our trips to the store,restaurants and parks use to be a challange, Francesco would scream when he heard loud noises (and still does for the most part).
Not only are our daily activities a challenge but FIGHTING for his rights as a disabled child has become overwhelming. Social Security and our secondary insurance often gets canceled. This is a problem for a number of our disabled babies in the U.S.
Our families have to fight off the mean things that are said about our kids and all the blank stares. We take these moments to teach those around us about my sons disablitily and that "just being blind" is far more than that.
My son has finished his first year of Pre-K and still struggles but we manage. He is a smart boy that plans to show this world that Septo Optic Dysplasia won't be an issue for him!