We are parents to Emma (8) Brooke (6) and Quinn (5). I did everything right during my pregnancy. We were so thankful to have 3 healthy beautiful children. Life was going great, we had plans for our future and childrens future. That all changed in Mar of 2012. We found Quinn in the hallway of our home not breathing and unresponsive. That was just the start of our journey. Within a couple weeks he was having 50 seizures a day. We have no history of seizures or neuro problems in our families. Quinn kept getting worse and not responding to treatments. He then was up to 300-500 seizures a day. Treatment after treatment failed... our family went through hell. We were in a hell on earth. Having to watch your child suffer and there is nothing u can do to help them is the worst thing. He was diagnosed with Lennox Gastaut Syndrome and then Doose syndrome. Both are rare disorders and there is no known cause. Just comes out of nowhere with no warning. Our lives changed in the blink of an eye. We now live day to day, hour by hour and min by min. Here is Quinns fb page with updates www.facebook.com/quinnsjourney we post updates to this page.
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