- Posted June 23, 2014 by
This iReport is part of an assignment:
Raising a special needs child
Choosing to Raise a special needs child
Two days later we went to the OB/GYN and saw our baby girl for the first time on ultrasound. She had shortened bowed limbs. We also found out the mom was CURRENTLY using drugs. YIKES. Three weeks later we met the mom at the hospital. As our daughter was brought into the world via C-section, I was there to see her first moments of life. SCARY MOMENTS. She was a broken mess. This was MUCH more than dwarfism. We took her via ambulance to Riley hospital. A full body x-ray showed over 30 fractures in various stages of healing. She was 3 pounds 5 ounces. The bluest eyes you have ever seen. She was born May 27th, 2001. We brought her home on June 9th. As soon as we were able to get her to 4 lbs even they let her leave the hospital. ON HOSPICE, they didn't think she would live. While in the ICU her arm was broken by a blood pressure cuff and her femur was broken while a nurse was changing a diaper. She started on an experimental medicine while still in ICU, it was to slow down the bone turnover. It was to make thicker bad bone. Kayte had been diagnosed with Osteogenesis Imperfecta type II. Eventually her diagnosis was changed to type III (type II is fatal). She went nearly six months before her next fracture. We traveled to the National Institute of Health for medical care. Sought out a second opinion in Montreal Canada at the Shriners Children's Hospital. Had surgery's done in Omaha Nebraska. Our journey over the last 13 years has taken us many miles, we have crossed paths with so many wonderful people. Kayte lights up the lives of everyone she meets. She is truly our gift from God. Our story is much deeper. It includes a 43 day hospital stay, laying on ventilator in a coma, near death. To watching her star in her 7th grade Christmas play, bringing tears to so many eyes as she sang Give this Christmas Away. Please feel free to contact us for a deeper story. Kayte is so charismatic. You will fall in love with her.
Here is her singing at Christmas: https://fbcdn-video-a.akamaihd.net/hvideo-ak-xpa1/v/t43.1792-2/1527302_10202011681047391_1150870404_n.mp4?oh=0abd9604f316322e2f13d1c9ad34e1db&oe=53A8D256&__gda__=1403573690_31eaaca74097fbc3da073d7c8c1d6981
The first picture is Kayte next to another 7th grader. It shows how small she is, part of her OI includes dwarfism. (along with brittle bones)