- Posted July 2, 2014 by
This iReport is part of an assignment:
Raising a special needs child
The Hidden Cost of Raising a Special Needs Child
Many people talk about the trials and joys of raising children with special needs. I miss both the trials and the joys. Andrew has been medically cleared to come home. Many new programs in the state, including new insurance laws, would give us the support possible to make that happen. His brother and sister and I miss him every day. 350 miles can sometimes seem like 3,500. Unfortunately, it has become a long and arduous fight to bring my son back home to his family. The hidden cost of raising a child with special needs is how painful it is, each and every day, especially if you're separated from that child. I'm still the one who is called when there's a medical question, or to make an educational decisions, but I don't get to be a part of watching my son grow, seeing him learn new things, cuddling with him on late mornings, or watching how he interacts with his siblings.
If I could give any advice to parents of children with special needs, or parents of any children, it is to be grateful of the time that you have, and try to enjoy it. Every rare minute that I have with Andrew is a treasure, it doesn't matter how he behaves, it only matters that we're together. It's the same for my other children.