- Posted July 4, 2014 by
This iReport is part of an assignment:
Raising a special needs child
My child has inoperable brain tumors
The doctors kept telling us he was behind with his speech and that he needed to have speech therapy. It took several months to find a speech therapist. (If you need a career, go into anything that deals with kids. There seems to always be a wait list.) He loves speech therapy and his speech is coming along.
Things though are looking up as far as his tumors. We went every two weeks for chemo and Dylan is finally getting a type of chemo that has started shrinking his brain tumors. The latest MRI showed that his tumors are stable. They are no longer growing or shrinking. His doctors think that his tumors may never go away.
2012 was full of doctor’s appointments for the entire family. We had every other week chemo appointments for Dylan until September when chemo stopped due to causing problems with his kidneys. We hoped that he had received enough to keep the tumors from growing, but the October MRI showed that the tumors were growing again and Dylan will be having another one in December just right before Christmas.
On a positive note, Dylan was able to have his feeding tube removed. He has gotten his weight up and is eating better. We have also taken this opportunity while he is off chemo to put Dylan into child care. He loves it. He is excited to go. He goes 6 ½ hours a day. They are working with him on socialization. He likes playing with other kids. He is also receiving speech therapy at the child care. 2013 was an entire year without chemo appointments for Dylan. It has allowed our lives to be somewhat normal. He was able to get caught up on his vaccinations. Dylan’s tumors are stable and monitored with MRIs ever four months.
Dylan still loves his child care. He has so many friends there to get in trouble with. He is doing so well we have cut back on his speech therapy. We have started physical therapy to help him hold a pencil and use scissors. We also took him to be evaluated by a Neuro-Psychologist. She gave him an Attention Deficit Disorder Diagnosis. The diagnosis will help him when he starts Kindergarten in the fall of 2014. We have started family counseling to help us with his behavior issues.