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    Posted July 4, 2014 by
    kathleen1973
    Location
    Massachusetts
    Assignment
    Assignment
    This iReport is part of an assignment:
    Raising a special needs child

    Raising a child with a rare diagnosis

     
    My Son Liam has a rare diagnosis called Congenital Disorder of Glycosylation. He is the oneand only with a particular subtype called CDG type 1R. Liam has come through his 10 years with lots of ups and downs, however we continue to monitor him and expect nothing less than an enviable life for him, filled with friends and opportunities despite his needs.

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