- Posted July 8, 2014 by
Egg harbor township, New Jersey
This iReport is part of an assignment:
Raising a special needs child
My little super hero max!
Hi! My son max is 6 now will be 7 in dec... He has Down syndrome. When I was 6 months pregnant they had told me that I had a 50% chance of having a child with Down syndrome.. My first thought was omg what am I going to do how am I going to be able to raise him.. To tell you the truth i was so scared... Then when the time came to have him i had to have an emergency C-section... When I first saw him I was in love.. When I was put in recovery that's when they told that he might have it they weren't 100% sure.. When we found out that he did have it all these thoughts went through my head of how life was going to be for him.. It was scary but max is a little different..max began to progress more and more. When he first started school he started to talk more and more. He loves to learn.. He will skip recess just to do more work.. He loves to make people happy even if that means he gets in trouble.. He's my hero because from day one he has fought.. He's is just amazing.. I didn't know what Down syndrome was really.. And when I see look itto my sons eyes I see no different in some one who doesn't have a disability.. My son might not talk as much but when he try's he really fights for you to understand him.. Max is just your typical little 6 year,he loves to play fight get dirty pick on his sister.. Everyone at the school calls him mayor max because everyday he walks in to each classroom and greets everyone.. And he's got. Lots of friends that love him.. So you can say I'm pretty blessed to have such an amazing child in my life I say I'm lucky to have him cause everyday he makes my life that much better.. Now raising a child with special needs is sometimes a little hard.. At times I can't understand him or he wants to run away and having a baby plus a 4 year old and him can be very hard.. Max likes to test me all the time. I always have to keep my eye on him cause if I don't and he notices me not watching him he will run.. It's also hard cause he doesn't talk much and when somthing is wrong sometimes he can't tell me and I feel
so helpless cause I can't do anything.. Not everyone knows just how hard it is.. People will tell me how wonderful my kids are they really are but behind close doors I sometimes feel helpless and I'm always worry about what life will be like for him when we are gone.. Who's going to take him. Is he going to able to live on his own. Will he ever get married.. Will he be able to drive... I worry for him cause I don't want him to worry about things I want him to go through life with his eyes wide open and not judge people and always give every person a chance.. He's my world and I'm glad the day the doctor asked us if we wanted to keep him I said yes with no hesitation because no matter what life throws at us during this journey I am so greatful I got to have him in my life and I will be by his side to fight with him to make people realize that he is no different then everyone else!