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    Posted July 31, 2014 by
    This iReport is part of an assignment:
    Living with a chronic illness

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    Living a childhood with Sanfilippo disease

    Blair Chapin is a 12 year old girl with Sanfilippo. Sanfilippo is a life threatening disease and when diagnosed life expectancy is in mid teens. Blair is currently 12 and is very sick. Symptoms of Sanfilippo include Language delay, unable to have a conversation, Difficult behavior, extremely active and restless Sleeps very little at night Gets into everything, Difficult toilet training. Multiple ear infections, Gastrointestinal complications, Course facial features. Blaire is currently in the severe stage of Sanfilipo. Although the chances of saving her are very slim, there is a website where people can donate to Sanfilipo Reseach Foundation to help improve research. To keep up to date with Blaire, visit To help with research visit

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