1,113
VIEWS
22
COMMENTS
 
SHARES
About this iReport
  • Approved for CNN

  • Click to view Ryn's profile
    Posted March 29, 2009 by
    Ryn
    Location
    Knoxville, Tennessee
    Assignment
    Assignment
    This iReport is part of an assignment:
    Autism awareness

    More from Ryn

    Some Where In Isaac Land Asperger Syndrome

     

    Music: John Denver I Watch You Sleeping

    Isaac will be seven years old in April.

    He was diagnosed in September of 2007 with

    Asperger's syndrome, after being put out of

    both a Montessori and a Christian private k4

    classroom.

    We were told he was very aggressive, loud, uncooperative

    and a disturbance to the entire classroom.

    As his maternal grandmother and a primary caregiver

    I  had no idea what we were going to do.

    This little boy seemed so bright and advanced for his age.

    We were so excited that he would be going to school.

    He knew his ABC's and could count to one hundred, he could do simple math and had been reading kindergarten and some first grade material for six months.

    Isaac's Mom, myself and grandpa knew this little guy was on the quirky side.

    A little background

    Isaac had a very strange personality. Most often he preferred to play by himself and avoided groups of children at all cost. .He was very sensitive to bright lights, loud noises, certain foods and textures in his clothing.

    Everything was done in the proper sequence, at the same time of the day.

    He would become obsessed with a certain object. When he was younger it was a notebook. We attribute that to "Blue's Clue's.

    This boy would carry a notebook every where he went.

    It had to be a spiral note book and a pen had to fit into the

    spiral without falling out. He took notes where ever he went.

    Next came stop signs and anything octagon shaped. We would make countless stop signs and print them out.

    We introduced him to other street signs and shapes.This also became an obsession.

    Today it is all about Star Wars.( He still has his notebooks and street signs as well)

     

    We took him to his private pediatrician and she suggested we have him evaluated.

    It took three months to get in and many visits  before the diagnosis was given.

     

    Needless to say we were devastated and scared to death.

    This is where education, research and perseverance comes in.

    We read everything we could get our hands on.The pediatrician, psychiatrist and therapists were excellent communicating with all of us.

     

    We were told what we could expect.

    Isaac was above average intelligence, even though we didn't think the child would ever learn to talk.  He would get so frustrated with us. My daughter decided to teach him

    some basic American sign language, at about two years of age.

    He then could communicate things like milk, eat, potty, sleepy.

     

    They told us Isaac would more than likely excel in school, if his social skills did not hinder him. He was very anti social, especially with other children.

    We learned that we needed to say exactly what we meant to Isaac.

    Most often these children do not get jokes or humor. They don't know if you are teasing or not. They do not read facial expressions and have little empathy for people.

    One day his dad told him he was going to flush him down the toilet , it was a nightmare for weeks after.

    Lists, schedules and keeping a set routine is a must.

    Some people like to say these are just "bad" kids and need their butt busted.

    Well... I am sorry to say this is just not the case. Not that sometimes it may be bad behavior. Sometimes it is hard to know the difference.

    Going out in public with Isaac used to be a nightmare.

    He was always on overload and headed for a melt down.

    This is traumatic for him, the caregiver and the poor people around, having to witness it.

     

    I could never even touch on all the aspects of Asperger's in one post. I am getting ahead and behind myself.

     

    I will say that Isaac is half way through the first grade, mainstreamed into a regular classroom. He is reading

    on a second grade level and even higher in math.

    Isaac's social skills have improved greatly, but always need work.

    This is the most difficult part.

    There are times we know he is out there in "Isaac Land". It might last five minutes, it might last all day.

    You recognize those far away stares and and dreamy moods.

    You also recognize agitation, stemming, and frustration.

    We have been taught to know the signs of this and  the  signs of a pending melt down.

    As butterfly 1 has often said in her posts,  "You have to stay on your toes, always alert and in tune with your child"

     

    Isaac will more than likely grow up to be a productive member of society, quite capable of holding down job, marry and have a family of his own.

     

    Early intervention, education and awareness is  the key to find a prevention and cure for Autism.

    In two years we have seen a remarkable change in Isaac.

    Add your Story Add your Story