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    Posted May 22, 2008 by
    jlknox
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    This iReport is part of an assignment:
    Surviving a brain tumor

    BRAIN TUMORS SUCK!!!

     

    My husband was diagnosed with a malignant brain tumor almost

    3 years ago. He was only 32 years old and had just finished law

    school. I was pregnant with our first, and consequently only child.

    His diagnosis came out of left field after having a seizure he was

    immediately diagnosed. The doctors were inconclusive as to what

    stage the cancer was. Half said he had a mixed oligo astrocytoma

    (WHO II), the others said it was an anaplatic astrocytoma (WHO

    III). To make things even worse, the doctors cannot decide how much

    was removed, his surgeon claims to have taken out 90% of the

    visible lesion and the oncologist thinks it was more like 30%. We

    have traveled the county to find the best doctors. Some were

    trigger happy and wanted to radiate his whole head, likely

    resulting in him losing his ability to work as a lawyer. Other

    wanted to do NOTHING AT ALL!!! We finally found some solace with

    Dr. Arenson in Colorado. He has been through hell and back. The

    surgery left him paralyzed on the right side, radiation made him

    tired, and chemotherapy sick. Today things look a little better

    (hopefully) he is stable after 12 MRIs and able to walk, work, and

    play. For our family, we have to live in 3 month cycles, happy when

    the MRI is unchanged fearful in the weeks lead up to the next. We

    try to keep our spirits up, especially around our young child but

    the fear of living day to day is daunting. We wish ALL of those

    afflicted with brain tumors the best of luck. And hope the recent

    news of Ted Kennedy brings the issue of Brain Cancer, the lack of

    funding for Brain Cancer Research and Healthcare for ALL Americans

    into focus, not just for our family but for all families.

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