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  • Approved for CNN

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    Posted February 3, 2010 by
    cynthiafalar
    Location
    Vero Beach, Florida
    Assignment
    Assignment
    This iReport is part of an assignment:
    Autism awareness

    More from cynthiafalar

    Parents of Children with Autism Must Stand United

     

    CNN PRODUCER NOTE     cynthiafalar told me, 'To debate it [Autism-vaccine link] just divides us.' She believes that the retraction will draw more attention to Autism and that will facilitate more research into its causes.
    - jsarverCNN, CNN iReport intern

    In response to the Medical Journal Retracting a 1998 Study Linking Vaccines to Autism:

     

    Parents of Children with Autism Must Stand United

    On October 17, 2002 I had a choice.  Terminate a pregnancy or continue with the knowledge that my chances of a premature birth would produce a child with multiple developmental delays.   I remember it well.  The 3-D ultra sound showed a small, sweet and tiny foot.  At that moment I fell in love.

    As the doctor explained, “It’s a lot like pulling a boat with a VW Bug.  Can it be done?  Certainly!  However, you know the road will be long and it will not be easy.”  Then he continued to explain the risks.  His droning words were like those of the parents in a “Peanuts” cartoon.   My husband said, “You are not even listening!”  I just responded and pointed to the ultrasound screen, “I am having this baby!”

    Since that time, we have never looked back!  Trust me when I tell you the road has been long, hard and very bumpy.  So what does the recent report of the medical journal, “The Lancet,” retraction of the controversial 1998 paper mean to me?

    It means that people will remain divided.  They will continue to hold tight to their convictions despite the retraction.  You see there is a lack of trust.  I know that the parents in both camps love their children dearly.  They will go to the ends of their savings to “cure their child of Autism.”  They will do anything to release that inner voice or to manage behaviors that interfere with their independence.

    I think that as much as parents of children on the spectrum of Autism are divided on the topic, they are united in their love for their children.  It is my hope that continued research will build trust and understanding. Fighting over research as studies are released is not helpful.   My prayer is that love for the children will unite families of children who are touched by Autism.  We need each other.

    Here is what I do know:

    1. Early intervention works!
    2. Advocate like your hair is on fire!
    3. Develop a support team!
    4. Remember that there is not one plan for every child of Autism.
    5. Seek out evidence based methods and strategies.
    6. Celebrate your child’s differences and accomplishments daily.
    7. You are the parent.  You know your child.  Know what you want for your kid and go after it.  Fight for their life.  You are the only one who can do that.
    8. Pay it forward.  Reach out to encourage and support other parents.  You will be blessed by it.

    Cynthia Falardeau

    Proud Mother of J. Wyatt Falardeau (7 years old)

    Vero Beach, FL

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