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Posted April 1, 2008
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Riverton, Wyoming
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This iReport is part of an assignment:
Living with autism |
I hope you do a storyon Hypoparathyroidism I will be meeting with Senator Mike Enzi in June.
Hi, I have a rare disease called Hypoparathyroidism. I'm inspired by your stories on Autism. I have known a few people with autism. In fact a good friend of mine has a son that has it.
In my disease is very rare. I joined our Hypoparathyroidism Association and it changed my life.
I lived a nightmare of a story but I had learned about an amazing doctor her name is Doctor Karen Winer out of National Institute of Health out of Bestheda, Maryland.
It has been truly a miracle.
Prior to NIH I was having seizures, severe tetany, terrible brain fog or confusion, muscle twitches, spasms.
If I had not gone to NIH I would have ended up in psych ward most likely and or nursing home.
Since NIH I have had many posititive things happen.
In June I will be meeting with Senator MIke Enzi talking about Hypoparathyroidism and issues important to our association. I'm so excited. I maybe on tv on another show.
I really hope you will consider this story. It is finally getting accross people. i want to tell my story as others have with other diseases and conditions such as autism.
I want to share what we have gained with meeting with Senator Mike Enzi.
Since going to NIH I have relocated and have completely become independant again.
I'm going back to college as well to finish what I started years ago.
I hope you will do this story. I will send more information.
You may go to www.hpth.org
Bridgett G
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