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  • Approved for CNN

  • Click to view hsolinski's profile
    Posted August 13, 2012 by
    hsolinski
    Location
    Saraoga, California
    Assignment
    Assignment
    This iReport is part of an assignment:
    Living with MS

    MS Patient Drug Hunter

     

    CNN PRODUCER NOTE     hsolinski told me, 'I was at the height of my career in high tech manufacturing with a brand new baby at home when I was diagnosed. The first few years, I tried to hide my disease and pushed myself as hard as I could, but there was a point when I simply let go. I realized I couldn’t bear to stand on the sidelines, hoping for better MS drugs. I gave up security and stability in the corporate world to dedicate my efforts to finding an MS cure.'
    - hhanks, CNN iReport producer


    My name is Helen Solinski, and I was diagnosed with multiple sclerosis (MS) in 2003. When I was diagnosed, my first question to her doctor was "Will I pass this onto my son?"....Carson, since MS runs in families.

    Since my diagnosis, I have given up my 25 year career in Silicon Valley high-tech and refocused my efforts to find better drug for MS, one that reverses the disease damage, doing so much more than simply slowing down the disease. This “pipedream” is not yet available for patients. I began examining and volunteering with other MS organizations and the research they were funding--and became frustrated by the lack of focus, agility and results of the MS research that did not seem to advance potential cures to patients.

    When I found out about the Myelin Repair Foundation in 2004, whose mission was to find a myelin repair treatment for MS patients, I knew that by restoring my body's ability to repair myelin, reversing the effects of MS-- was my best hope to maintain my mobility so I could continue to play baseball with my son Carson and walk our dog, Abigail. I began to volunteer in 2004 with the Myelin Repair Foundation and has since joined the staff as a manager of donor relations, working every day, determined to change the course of this horrible disease.
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