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    Posted May 16, 2013 by
    Lake Geneva, Wisconsin
    This iReport is part of an assignment:
    Photo essays: Your stories in pictures

    More from lisahilton

    Worldwide Lyme Disease Awareness Protest


    CNN PRODUCER NOTE     lisahilton has lyme disease herself and was a part of a movement to help spread the word about the infectious disease. She captured these images in Wisconsin and Illinois as people rallied to educate the public about lyme disease. She hopes the public will be more aware of the disease, 'This is growing. It is really serious. I have new people added to my lyme support group everyday. I can no longer keep up,' she said. She says one of the goals of the group is to see more research and testing done for lyme disease. 'I do lyme walks, lyme protests and any awareness events I can all year. I think it is too late for me to get better but my goal is to help others not end up like me,' she said.
    - TeamiReport, CNN iReport producer

    I'm not sure what it takes to make the news. It seems Swine Flu and new vaccinations get on pretty easily, while those who suffer with Lyme Disease keep being ignored.  But being that it is Spring and it would be a good time to bring about Lyme Awareness as ticks will be out in full force, I thought this would be a great opportunity for you to do a story on Lyme Disease to prevent some folks from getting ill.


    This last weekend of May 10 & 11th. About 30 countries and several states all protested on the same day. Lyme patients from around the world all united to bring awareness to this much overlooked disease. If that is not news, I don't know what is!


    People are so afraid to say the "L" word. It is so surrounded in controversy. In the meanwhile, many people are suffering, their lives being whisked away and dying. Whole families are being turned upside down. Please hear our pleas and be the hero that does something about it. Please.


    I am not a fancy writer, I am not a doctor, I am not someone who can shoot off stats at the blink of an eye. Well, to be honest there is hardly any stats on Lyme Disease or any of the co infections that ticks spread because noone cares enough to do any research since the CDC and IDSA act like it is just cured with a couple weeks of antibiotics.


    In the meantime everyone is ignoring all the research that is pointing to it being possibly transmitted by other bugs, congenitally, through blood banks and possibly even sexually transmitted as it's found in semen. Please take a look at these research links. Just a couple I have found throughout the years that really need to get in doctors hands but for some reason, are not. http://whatislyme.com/research-links/


    If you are interested in how many people are sick with Lyme, please take a look at these two blogs. These are the faces of Lyme. These are people from around the world who all protested on May 10 and May 11th to bring justice to those of us suffering. This protest was completely grassroots, and put on by those who are very very sick. It was not easy.

    US Worldwide Lyme Protest Blog http://worldwidelymediseaseprotestus.blogspot.com/

    Worldiwde Lyme Protest Blog http://worldwidelymediseaseprotest.blogspot.com/


    I was the US coordinator. I am sick too for over 20 years. I'm just plain sick and tired of being sick and tired and ignored. This has to end. I won't shut up until it does.


    Next Lyme Awareness Rally - Mayday 2013


    SATURDAY, MAY 25th, 2013
    10:30 AM - 2:30 PM


    With best regards,


    Lisa Hilton

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